Tuesday, June 19, 2018

Update For 2018 - Life Goes On



Towards  the end of 2017 Helen had driven her ancient Toyota Camry from South Australia with Ann, and Logie her dog to visit me as I recovered from surgery.  The car is nearly 30 years old and was loaded to the gills.  I was amazed that it got home again.  The round trip was 4.800 Km.

She wanted to make regular trips to visit so before Christmas I bought a 2016 Holden Trax mini SUV for her to use and tow my little camper trailer which I could no longer use.  In January she flew up to visit for three weeks and we both drove the Trax with the CT attached back to Adelaide.  The Trax towed the CT beautifully but after two nights camping, with Helen sleeping in the CT and me in my old large tent, we had had enough.  The temperature during the day was 40C plus and over 30C at night. I was two weak to drive and Helen was doing all the driving and setting up camp. We decided to stay in air conditioned cabins for the next two nights until we reached Helen ad Ann's house Charleston in the Adelaide hills.

The Trax and CT outside our cabin at Hay NSW  

Their old house (150 years plus) is not set up for old men so I stayed at the hotel in the next little town, Woodside.  The hotel is over 100 years old and is not air conditioned.   I only stayed two nights before flying back to Queenslandto  my air conditioned home.  We did have a great lunch in the hotel's dining room with some of Helen and Anne' friends.

My huge room at Woodside Hotel

Back home Meals on Wheels needed a driver to help another volunteer to deliver meals so I am back to driving Kath two or three times a month..  I also got back into a routine of shopping, walking Louis and light housework,  I have cleaner to do the heavy stuff.

In April Helen and Anne plus Logie towed the CT back to Tewantin to visit for month.  They had had difficulty setting up the CT as they are both height challenged so they decided to give it back.  We put a roof rack and luggage basket on the Trax for the trip home.

The all had a great visit but Logie didn't take to swimming in the local creek.

Louis showed him the way

Helen gave him encouragement while Ann watched on. 
As far as he go

Helen an Ann visited all the Op shops in Noosa while Logie waited at home.

When are the coming home?
We dined at the floating restaurant on the Noosa river
But soon it was time to go back to SA and away from the river.

Let''s go
No! not more bags
Full to the gills!
I will paste in my latest medical update to my Prostate cancer forum:

"I have just had my fourth Zoladex implant and this is a summary my progress since I posted my profile.
After three months my PSA had dropped to 0.5 from its previous 1.0. I was having occasional blood in my urine but was told this should settle down.
At six months my PSA was 0.4. I had begun to experience pain in my left hip and my right ankle was very sensitive to warm (in the shower) water. I was still having blood in my urine. I was told that things were "still holding on".
At seven months (May 2018) I had a stumble and jarred my left hip which caused me extreme pain. I was taken to the ER given morphine and x-rayed . There was no break but a bone scan was advised.
The bone scan showed that the metastases had grown. My GP referred me to a Radiation Oncologist. I was given five treatments of IMTR (Intensity-modulated radiotherapy)and I am now free of pain in my hip and can shower without wincing. It is a pity that they can't fix fatigue as easily.
Last week my PSA was reviewed. It was back at 1.0 and I was told that Zoledex had failed. I would now have Casodex added to Zoladex and my PSA checked in two months. I asked about Zytega ot Xtandi but was told that these required special approval on the Australian Pharmaceutical Benefits Scheme as they were Chemotherapy. I didn't think they were. I will wait to see how things progress and see my my Medical Oncologist who had advised me previously.
I now will have two month wait to see how I get on. At least Louis still gets his walks down by the creek .
Brian

This these are PBS requirement to receive Zytiga for $39.00 instead of $3,900.00
Castration resistant metastatic carcinoma of the prostate
Clinical criteria:
The treatment must be used in combination with a corticosteroid,
AND
The treatment must not be used in combination with chemotherapy,
AND
Patient must have failed treatment with docetaxel due to resistance or intolerance; OR
Patient must be unsuitable for docetaxel treatment on the basis of predicted intolerance to docetaxel,
AND
Patient must have a WHO performance status of 2 or less,
AND
Patient must not receive PBS-subsidised abiraterone if progressive disease develops while on abiraterone,
AND
Patient must not have received prior treatment with enzalutamide; OR
Patient must have developed intolerance to enzalutamide of a severity necessitating permanent treatment withdrawal."

This is all for now.

Brian


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